November 28, 2003

Friday report

Maddy went to occupational therapy (I don't know why
they don't call it physical therapy) this morning,
and with their help, she walked about one-fourth
of a block. After three weeks in bed, her muscle
tone is very poor and weak. The exercise went
well, though, and at the end, her oxygen uptake was
100 percent. She'll go back to OT on Monday.

She is feeling "quiet" today and a bit down. She
is scheduled for a transfusion this afternoon
because all her counts have dropped. She says she
always feels tired and has difficulty focusing when
she needs a transfusion.

She's still breathless, but her lungs feel clearer.
They are running so much liquid into her by IV,
"24-7," that her legs are swollen and her toes hurt.
She declares she is "going to put my foot down about
it." (I don't know if the pun was intentional.)

As a Thanksgiving treat, they brought around Krispy Kreme
doughnuts last night, and Maddy had her first one
ever. She said it lived up to its billing as a
tasty grease-bomb.

Anthony, she does like ginger marmalade, but has enough
marmalade for the time being. As a suggestion, you might
wait a month or so, then send her some.


Posted by eliz at November 28, 2003 02:30 PM
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